The emotional, physical and financial demands and responsibilities of an individual’s illness that are placed on family members, friends or other individuals involved with the individual outside the health care system.
A person who provides support and assistance, formal or informal, with various activities to persons with disabilities or long-term conditions, or persons who are elderly. This person may provide emotional or financial support, as well as hands-on help with different tasks. Caregiving may also be done from long distance. See also “formal assistance”; “informal assistance”.... caregiver
the extra work or worry imposed on a patient by a treatment regime. This might include e.g. arranging and attending hospital appointments, collecting and managing medication, learning about a condition, and making lifestyle changes. For those with chronic conditions, these tasks can impose a significant toll on energy and wellbeing as well as disrupting their family and working life.... burden of treatment
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